Saturday, May 17, 2008

Update from Annette Clements regarding our Friends, Ashley!


We had another doctor apt. today and we have some GREAT news. The doctor gave Ash permission to get up and try to walk around for small amounts of time. She did a little today, she even went to the barn (not to ride, to watch someone else ride Allie) but it wore her out pretty quickly. We are going to work on it day by day to see if we can get her back to normal. Her meds are still making her nauseous, but they are WORKING!! We are on the right track!!

A note to all from Lauren Kirby sent for Ashley

Lauren Kirby has sent you a link to a blog:

My prayers go out to Ashley. I was diagnosed w/ dysautonomia in 2005. W/ good medical care and strong support I made a very successful recovery. I found the dinetwork.org is a wonderful organization that helps patients and families cope and understand these disorders/disease.

Tuesday, May 13, 2008

What is POTS Disease?


How wonderful it is to have friends! Ashley's friend, C.C. Holt wrote the following.


"Hey Susan!"


I was looking up POTS Disease, and these are all the symptoms.: ,I was wondering if you could put them on your site so people could understand what Ashley is going through.


Dizzy , lightheaded, chest pain, heart pain , Shortness of breath, blurry vision , tingling , sweating, vertigo, ectopic heartbeats, low standing pulse pressure, Frequent urination, Reactive hypoglycemia , difficulty sleeping, Central sleep apnea, Low grade fevers , mild chills , general flu like symptoms, positive anti-nuclear antibody tests (ANA test), Chronic fatigue and weakness, uncommon food allergies, highly drug and chemical sensitive, night sweats, irritablebowel syndrome, Difficulty swallowing, Numbness in palms and soles, acral coldness, dramatically reduced sweating, poor balance, abnormal gait, Eye pain, poor memory"


Ashley...all your friends are thinking of you, praying and wishing you well! You'll be back in the saddle again! BIG HUGS!!!

Susan